Testimony
/ Brenda Williams
Hello,
My name is Brenda and this is my testimony about a rare disease that I was diagnosed with in 1997, know as Trigeminal Neuralgia (TN- tic doulourex). This disease is not fatal, but it is universally considered to be the most painful affliction known to medical practice and can be trigged by something as simple as the wind blowing against your face. It effects the seventh cranial nerve and brain nerves are said to be shaped somewhat like a piece of linguine (rounded), however in my case, according to my doctors, the main artery in my brain had been laying against my nerve for many years and from the constant pulsation of the artery, it eventually pounded my nerve flat, much like a ribbon, along with destroying the myelin sheath, which is designed to protect the nerve.
I have suffered for almost twenty years with the pain from this dreadful condition. It had literally been a everyday every second of the day, long heart wrenching painful journey for me and my family. In my opinion this disease and it’s effects was birthed straight from the pits of Hell and from it my life was totally turned up-side down and every which way but loose, until I discovered a incredible non-invasive procedure known as Neuro Cranial Restructuring, which I will discuss later in this letter. But first I must tell you about my horrendous adventure.
My pain originally started in 1981 in my sinus area and behind my right eye socket. At this time this disease (TN) was considered as rare and extremely difficult to diagnose, therefore I wasn't properly diagnosed, until years later in 1997. Meanwhile in between those years the pain progressively grew worst to the point of suicide pain. It was as if, someone had rammed a red hot ice-pick up my nose, which caused a bomb like explosion within my face and head, it also began to create, radiating fathom pain within my teeth much like a domino effect and gradually overtime, even with every attempt to save my teeth, I eventually lost all my teeth on one side.
Finally by 1997, I was diagnosed with having Trigeminal Neuralgia, Sphenopalatine Neuralgia and Temporomandibular Joint ( TMJ) Dysfunction, but not before I had under gone two misdiagnosed, Endoscopes surgeries in 1991 and 1995, which according to varies doctor’s this should’ve lessen my pain, however it didn‘t. Needless to say the Endoscopes surgeries were a major failure along with the misdiagnoses of some reoccurring TMJ pain that I was treated for back in 1982, with good results, yet now it seemly had reoccurred, since the lost of my teeth from the TN pain . At this point I’m still unaware as to what type of illness I’m really up against. My thinking along with my doctors, was maybe this could be reoccurring TMJ pain, so my next approach in 1996 was to seek corrective treatment once again, in hopes that this would stop my facial pain, however that was all to no avail, plus treatment for TMJ back then was extremely costly with only a handful of doctors knowing how to correctively treat this condition.
In my effort to avoid having any type of brain surgery, I then tried other alternative procedures, such as, change in diet, exercise, traveling every weekends for five months to Mexico for Chelation Therapy treatments because it was more affordable there at $55.00 per treatment oppose to $2,500.00 in the United States for four treatments, yet still no pain relief. After that I tried a three month session of this eastern and western philosophy of medicine known as Neuro-Bio Energetic, which turned out, literally to be a form of human torture.
The first treatment consisted of over twenty-two trigger point injections over my entire body, starting from the crown of my head then making it’s way down to between my big toe. It was as painful as the TN pain, it causing native like, primitive cries to come up out of me .
As the pain continued to rage out of control, in 1998 I under went the first of three brain surgeries starting with Micro Vascular Decompression then six months later Stereotactic Radio Surgery and in 1999 a Radiofrequency Rhizotomy and since than I have under gone additional surgical procedures known to treat TN, including Radio Frequency Thermocoagulation of the C2/C3 ganglion , three Stellate Ganglion Block of the C7 nerve and recently a Epidural of the C2/C3. Ironically with each procedure I would only receive a small amount of pain relief, then after a few months somehow this pain would find it’s way back, but to a greater degree.
As for oral medications, unfortunately I was totally intolerant to the seizure kind of medications, as well as some others, such as Morphine, therefore this created a bigger problem for me, which resulted in what I refer to as experimental testing, with me as the guinea pig. Nevertheless over the years I have taken more then sixty different types of drugs to combat this pain with no substantial improvement. This resulted in me becoming very-very well known at my contracted hospital, especially for the long hours that I spent waiting to get some type of pain relief and for the number of hospital admits. Mainly my treatment in the hospital over the years consisted of a multitude of Demerol/Dilaudid injections up to 5mg with multiple hospital admissions, meaning literally in excess of over seventy, emergency room visits and or hospital admits, within a two year period.
Let me continue because it doesn’t stop there. I eventually and regretfully for the next three years ended up with a Intrathecal Infusion Implant Morphine Pump, this form of pain therapy virtually almost killed me dead. I couldn’t eat nor sleep. I was contently vomiting with a weight lost of over sixty pound. Once it was determined that the medication in the pump was killing me ,it was then removed. This sent me into a overwhelming ten month battle of fighting withdrawals from the drug dependency. Now, imagine that, TN pain and withdrawals both attacking your body at the same time, this was not a good mixture nor was it a pretty site, as a matter of fact it was totally devastating to my life and my family .
I had spent the majority of my youth fight this disease, all to be left, a emotional wreck, a hermit, jobless, toothless and suffering with the after effects of burning and numbness sensation within my face from the varies procedures, yet the irony of it all, is that I was still suffering from the TN pain.
I have a quote, that I've coined in reference to TN and it simply states "If I had an enemy I would never wish this disease (TN) upon him or her, for death would be far better for them, then a life of punishment with TN".
I feel this way because I've been through just about every treatments that medical science had to offer and somehow through my experience, I must say "I am not impressed whatsoever, with the surgical and or drug treatments for this disease (TN)”, therefore because of this I had been determine to find a treatment and or a cure that really worked.
Then one day while in excruciating pain and out of pure desperation, I e-mailed UCLA about my problem. In return they informed me about Neuro Cranial Restructuring (NCR). I had never heard of anything like this. Yeah, I know, it sounds kind of like NUCCA, however it's not. It's procedure is similarly as far as alignment of the spine is considered, but NCR offers a technique that NUCCA does perform. Whereby a small "endonasal" balloon is inserted into the nostril, briefly inflated, and quickly removed to unwind the body and return it towards its original design. The inflation itself is painless, but there is a weird sensation in the nostril that comes from the inflation, plus I think, along with just the idea of a balloon being inflated in your nostril is just weird, however it’s non-invasive, it’s painless and it really works. For me NCR has been a God sent cause before I discovering NCR, I had no life whatsoever. I was very much a depressed recluse, suffering in pain and addicted to prescription drugs. My first impression of getting a balloons put up my nose was “ what’s the heck “ I’ve tried everything anyways. I felt I had nothing to lose, plus at this time I was currently taking 2mg of Dilaudid and Atvian three times per day to control my pain.
My first few treatments were somewhat discouraging because of more head pain, I didn’t like it, but I had to remember that my skull was now being shifted to a God’s designed alignment . After about the third treatment I was home free and the following treatments were like a walk-in the park. I been taken treatments now for about six months. My treatments consist of usually three balloons twice a week. I have now had over twenty treatments, so I kind of consider myself somewhat of a expert in this matter, even those I regret the fact that I had no knowledge of this treatment before having all those pervious surgeries, but I’m still thankful because without a doubt NCR has given me back my life. I have less painful days and when there is pain I now can control it with two pills per incident instead of taking a hundred and sixty pills per month. I would highly recommend NRC to anyone that may be considering a invasive cranial surgery dealing with chronic nerve disorder pain. Please try it, you won’t have any regrets, it really works and it’s very affordable, plus you’ll just love Dr. Adam.
Brenda Williams
August 22, 2007
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